The goblin in my head

goblinHave you ever noticed someone who moves abruptly, as if they couldn’t control their own body? I bet you have! But usually you’d either look away or you’d try to give the person a furtive look because you’re wondering what they’re doing. Well, I’m one of those people fidgeting around in public owing to a disease called Tourette’s syndrome. As most of you’d probably try to avoid interrogating me in order not to make me feel uncomfortable, I’m going to answer the Top 10 questions I’ve been asked because I want to give you an insight into my life with Tourette’s.

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1. What is Tourette’s?

This is, of course, one of the most frequent questions. Science defines Tourette’s syndrome as a neuro-psychological disease which appears in the form of so-called tics, which are involuntary, quick and suddenly occurring movements or sounds. Motor tics are usually way more frequent than vocal tics, but they can also happen in combination. In my opinion, this definition is very abstract, which is why I prefer to explain it differently. Children can understand the illness best with the image of a goblin playing tricks on my brain. However, my favorite explanation is the filter in my brain; our brain sends thousands of commands to the nerves every day. But not all of them are useful or necessary and the filter sorts these out. In my case, the filter leaks, so that my brain instructs me to laugh and at the same time I shake my head – quite confusing, right?

2. What kind of tics do you have?

All kinds! From shaking my head or rolling my eyes to clearing my throat or hiccupping or twisting my legs. Sometimes a certain tic doesn’t occur for a year and then – all of a sudden – it reappears, but even worse than before. Or it disappears forever. In principle, my tics always vary and from time to time I ask myself how my body is actually able to carry out such movements or sounds. And although it might look funny, my tics can be very painful; there was a time when I used to dislocate my thumb so I had to wear a splint for weeks.

3. When do your tics occur?

Whenever they want. Usually, they get worse when I feel stressed in a certain situation or place or when I’m surrounded by strangers. But very often they occur when I’m totally relaxed, as if my brain was getting rid of all the tension, and my tics unload. In periods like this, I need to do less in general because the tics occur in concentration, which completely exhausts me. The funny thing is that sometimes, I’m tic-free for several days and during the night, I’m totally calm as well. So, as you can see, Tourette’s has a mind of its own.

 4. Can’t you control your tics?

I’ve already partially answered this question. So, I can hold my tics back for a short time in order not to attract too much attention. The only problem is: whenever I suppress a tic, it’s really tiring, and comes back much worse. That’s why I usually let my tics come as they do because suppressing them has always had the opposite effect to what I wanted to achieve with it.

5. How does having a tic feel?

That’s hard to answer since I don’t know a constant state without Tourette’s. But you could probably compare it to the feeling before you hiccup, when the pressure slowly rises from the throat before it happens. And this light pressure persists the whole day. However, if small tics like rolling my eyes occur, I usually don’t even notice them anymore.

6. Why don’t you swear?

Yeah, Tourette’s is mostly associated with vocal tics, especially swearing. And in some rare moments, I think that it would be so great to hurl an insult at a grumpy waiter and to even have a ready-made excuse for it. But actually, only about 20 % of those affected suffer from this severe form of Tourette’s. And I’m very happy to be one of the other 80 % because so-called ‘coprolalia’ is emotionally trying and very restricting.

7. What do you think about Tourette’s jokes?

I have a sense of irony. So, if the jokes are funny, I can laugh at them. However, if the jokes are meant to hurt someone’s feelings, I confront the person, which usually helps!

 8. Are you disabled?

That’s quite a question! I think nobody wants to be asked whether they’re disabled. You can probably imagine how shocked I was when I heard this question for the first time. This was actually the moment I realised how conspicuous my tics really are. Of course, I tried to stay calm on the outside and keep my poker face. But on the inside, a part of me, the part that believed that I’m as normal as everybody else, just broke. Naturally, I tried to convince myself that these people simply don’t think about how their words can hurt people. But after this event, I cut myself off from the outside world for a while and it took me a long time to get over it.

9. Does Tourette’s syndrome restrict your daily life?

That’s always kind of a tricky question. As I’ve already said, my tics vary in their manner and frequency. Minor tics like rolling my eyes occasionally don’t have a big impact on my daily life. However, if I’m stressed or nervous, I also combine tics. I start rolling my eyes and at the same time I shake my head vigorously and hiccup. Sometimes, my motor tics are so frequent and heavy that I can’t drive since I can’t have a constant eye on the traffic. At such times, my mom or friends drive to minimize the risk for others. And there are some things I can’t enjoy like others do:  a rush of adrenaline or alcohol aren’t good for me and my tics get unbelievably strong because my brain is overtaxed with so many stimuli at the same time.

10. Can Tourette’s be cured?

Unfortunately not. I’ve been suffering from Tourette’s since the age of four and believe me, I’ve visited a lot of doctors in my life so far. Of course, there are medicines to suppress the tics, but they usually have a strong sedative effect as well. From time to time, scientists conduct surveys about new ways of healing, like a medicinal cannabis spray that helps sufferers to relax. However, all these drugs have very strong side effects so that I’ve never tried any. I think as long as I’m not suffering from one of the severe forms of Tourette’s, I’ll just try to get along and find other, more natural ways to relax.

These were my Top-10-questions about Tourette’s, answered by someone affected and not by scientists just giving theoretical explanations. I really hope that my article has uncovered the mystery of this disease so that the next time you see someone making weird movements or sounds, you won’t freeze in total shock or pure fascination but remain relaxed and open-minded. Because as you know now, people like me only have a goblin in their head fooling around.

Author: Theresa Hartl
Picture: Konstantin Hartl

Lifehacks for your sleep

It’s two a.m. and you’re tossing and turning in your bed. You have to get up at six to get to your 8:15 class on time (officially), which stresses you out, making it even more difficult to fall asleep. Your sweet old grandmother’s advice to drink warm milk with honey hasn’t worked. All you want is to not be tired in the morning for a change. Sound familiar? Now, ideally, you would examine your life and question every decision that has gotten you into this situation and improve all the areas that prevent you from sleeping. Exercise regularly. No Netflix binges. Stop eating unhealthy food. But what’s that you say? Ain’t nobody got time for that? You want a few tricks that will help you sleep well without actually sacrificing anything or significantly changing any aspect of your life? You’ve come to the right place.

1.5 is the magic number

This is by far the most important rule. 1.5 is the length of an average sleep cycle, so you should aim for the hours you sleep to be a multiple of 1.5 (3 hours, 4.5 hours, 6 hours, 7.5 hours and so on). Interrupting a sleep cycle is pretty much the worst thing you can do for your sleep. It will leave you tired, no matter how many hours you slept. This leads to some counter-intuitive truths sleeping 7 hours will leave you more tired than 6 hours, because 4 x 1,5 = 6. Get the idea?

Blue light is a no-go

Fair enough, you say, but you’re having trouble even falling asleep? It might be because you’re staring atpic a screen all day every day. That’s right, your mother had a point when she told you to put your phone away. But relax you don’t have to give up your Netflix binges and nightly meme-browsing on your phone. The culprit is the blue light emitting from your screen (wave-length between 400 to 495 nm). It inhibits the release of melatonin, the hormone responsible for making you sleepy. But that can be improved pretty easily. You can filter out the blue light with the help of apps, such as f.lux for your computer or Twilight for your phone. (Warning: side effects include being asked from time to time why your screen is tinged orange-ish. Or so I’ve heard.)

Eat to sleep deep

Ok, you’ve followed all of the advice but you’re still not happy because you wake up in the middle of the night? Might be natural, in which case you should just accept it as part of your natural sleep pattern, or, what’s more likely, it might be because of your blood sugar dropping rapidly. To make sure that doesn’t happen:

DON’T: eat simple carbs in the evening, like white bread, white pasta, candy or literally anything that’s a carb and that’s white.

DO: eat complex carbs in the evening, like whole grains, beans or oatmeal. They take longer to break down and to absorb, so they will provide your body with slow and steady energy.

There you have it. If these tips don’t help you, you might want to look into slightly more extreme methods, like traveling to Tibet studying with Buddhist monks until you overcome your earthly desire for sleep or replacing all of your blood with coffee.

Author & Picture: Maria Diamantopoulou

You can’t weigh beauty

I always had the feeling that social media were dominated by young women with a skinny frame and flawless bodies, thus setting the standards for “beauty”. But when scrolling through Instagram lately, I see more and more photos of overweight women proudly showing their curves and flab. They smile into the camera without any shame. And also pictures, in which models reveal the magic of photoshop, flexing and perfect lighting, fill up social media. “Where do they get their confidence from?” I asked myself. Then my eye hit the…

…#bodypositivity

Body positivity is a movement used to show self-empowerment. It’s a way to liberate people from the social stigma of what a body should look like. It’s all wrapped up with the idea that even if your body doesn’t comply with what society deems to be beautiful, it isn’t necessarily something that needs to be fixed. Over the last few years, more and more people have become part of the movement. It promotes the idea that all bodies are beautiful, equal, deserves respect and that everyone should feel confident in their own body.

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Reality

Unfortunately, not all bodies are treated in this way. Because of all the stigmas such as fat people being lazy, overweight people are hired and paid less on average. As a nation, we have to understand that not every body looks like perfectly-shaped fashion images. Not every woman is blessed with big breasts and no cellulitis. The social pressure to look the way society expects you to affects people of all sizes, but, in fact, many overweight people must deal with harmful comments on a daily basis.

Importance

Body positivity is often questioned by people who accuse the movement of simply glorifying obesity and sending people to an early grave. As a nation, we are overweight and this is a really huge issue. But making people feel miserable about themselves won’t work. And, fat shaming is extremely harmful and science has proven that it leads to weight gain. If you feel terrible every time you look in the mirror, you won’t be motivated to make a change. We need to accept our body before we can move in the right direction. For example, non-judgmental acceptance will allow people to make smart choices like adapting a healthy diet and exercising regularly. Shame on the other hand will just prevent them from fixing the problem and lead to irrational decisions such as crash diets. The sooner we accept the reality without adding extra negativity, the better we can deal with the situation.

Advice

For the people who have struggled with their figure for a long time, loving and accepting their body might seem like a Herculean task. One of the reasons is that our society and the media work against this acceptance by only showing flawless bodys, which isn’t an accurate representation of our society. And statements such as “real women have curves” and “strong is the new skinny”, only express how one body shape is superior to others. But by spreading the message that every body type is worthy of respect and by using models of all shaped and sizes, growing self-love would become easier. So, stop shaming others and show your body some love by accepting it with all its strengths and flaws!

Text & Pictures: Victoriy Fairley

Five things I hate about summer – and five things to make it all a little more bearable

Confession time: I haScreenshot_2017-07-19-15-54-14te summer. I know full well that I’m in the minority here, but it’s just what it is. It’s also not a very recent development for me, so I can’t really blame climate change or so. I know, though, that a lot of different things come into play which make me hate the favorite season of the majority of the population.

The most obvious reason is, of course, the heat. My favorite temperature is somewhere between 13° and 18°. In summer, it seems like it’s 30+° most of the time. There’s just no middle ground anymore. The thing is I’d be totally able to deal with it if it wasn’t so humid. This is what makes the heat so unbearable.

And this brings me to my third point. As a consequence of the heat and the humidity, I sweat. Yet I always seem to be the only one. Other people don’t suddenly have a very shiny forehead or little rivers running down their necks, slowly making their way down the back, even though they are not doing anything that could possibly lead to sweating. I, of course, do have to deal with both. All the time.

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Number four on my list of most hated things about summer would be spiders and bugs. Bugs simply bug me. German bugs more than others, though. In other countries, they seem to leave me alone most of the time. In Germany, they seem to attack me the moment I step outside, but, of course, they also don’t leave me alone when I’m inside either. They’re just always there. What makes it all so much worse is that outside they find a way in my mouth, even though I have my lips pressed tight together, and inside they have a tendency to drown in whatever drink I have standing on the table. It doesn’t even have to be something sweet like orange juice or lemon water. They’re just as alright with dying in a regular glass of sparkling water. Apparently, they really like the added thrill of the bubbles.

Finally, number five is that everybody all of a sudden flocks outside like a bunch of summer zombies. I actually spend a significant amount of time outside all year round, so naturally I wonder: where are all these people in winter?
So in case anyone feels the same way I do about summer, here are five tips to get through it all relatively unscathed:

  1. Obviously, you should make the air condition or your fan your new best friend.
  2. Don’t take a cold shower. This only heats up your body way faster afterwards.
  3. Insect repellents are your second best friend 😉
  4. Always look in your glass before you drink, you never know what’s floating on top.
  5. Count down the days ’till September 1st, the magical day of meteorological start of fall 🙂

Finally, hang in there: it’s going to be autumn soon.

 

Author & Pictures: Alisa Lechky

A mole on the campus

20170707_113730_edited_oval.jpegHi, let me introduce myself. My name is Stefie; like you, I’m a student at the university of Augsburg and I’m rather short-sighted. Please, let me assure you that I’m not one of those disabled super heroes who are often shown on TV or mentioned in newspapers. What I mean is that I’m short-sighted, but none of my other senses have developed in an extraordinary way. I’m a completely average student struggling, more or less, with the same issues as you.

Hail to the public transport service

I have to consider things that have possibly never occurred to you. Take, for example, the criteria for choosing the university you wanted to go to. In my case, I not only had to take into account the subject I wanted to study, or if I liked the city the university is situated in, but also if the university is one where everything is on the same site or if it’s easily accessible with the public transport system, or not. I’m not able to drive a car or cycle so I completely rely on the more or less (in some cases rather less) efficient public transport system, my own two feet or the help of my family for getting from point A to point B.

A mole in sheep’s clothing

What’s more, I have to tell people who I’m in a professional or close relationship with about my disability. So if you met me, you wouldn’t know that my short-sightedness is so strong. See, I’m a mole in perfect disguise; I wear glasses, but so do hundreds of other students. The difference is that many can perceive the world like completely healthy persons if they’re wearing their glasses, but for me this doesn’t work. Mine can only help me to perceive the contrast between different things more easily. And, so I’m talking about this to avoid misunderstandings like “I waved at you but you completely ignored me…”.

Communication, communication…

Of course, communication is very important for me because even when people know about my poor eyesight, I can’t expect them to think about it all the time. Take the lecturers at  university, for example; the majority of them are very nice and I’ve met no one who refused to help me or to make the slides for the presentation bigger so that I could follow the course. In order to be able to help me, they have to know that I have this kind of problem; and I have to remind them from time to time because they’ve not only got me sitting in front of them but sometimes over a hundred of students to think about.

‘Inclusion’ – what a wonderful word

In general, I like studying here but there are some things that still need to be improved. For example, there’s no general information anywhere on university website for people with disabilities. Well, there is someone you can consult for questions about studying with a handicap. But, it’s very difficult to approach this person and when you finally do, don’t expect too much. He probably doesn’t know more than you do.

 

Author & Pictures: Stefanie Sohnle

New year, new me

You might think it’s a bit late for a New Year article, but is it really? It’s only one month into 2017 and I don’t know about you, but I’ve already ignored half of my New Year’s resolutions at least once. If experience in the past few years is anything to go by, though, I’ll have to wait until next year to give it a go again. But there’s a way to break the trend and still achieve your goals. Yes, even today!

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Less chocolate, more sports

Judging from the commercials and articles I see around this time of the year, the top resolutions are: being healthier (including doing more sports, losing weight and downing smoothies for breakfast), as well as classics like quitting smoking. Being more organized is also a favorite, at least for me anyway. I don’t know how you feel, but the Christmas holidays, including New Year’s Eve, are (also) exceptional compared to other times of the year. So this might be the worst time to start working on goals that you want to continue to work on when you’re back in your normal routine. But that doesn’t mean
that you shouldn’t have them.

Start next Monday 

Know the feeling when it’s 3:11 p.m. and you have to study, but you just can’t because 3:11 isn’t the right time? You have to wait until 4 p.m.! I think most of us struggle with our resolutions in a similar way. But here’s the good news: you don’t have to wait a whole year to achieve your goals. There are so many new beginnings: start in the next hour, next Monday, next month – whenever you feel like it!

Small steps 

Needless to say, goals require a plan, and plans require to-do lists (written on pretty paper because that makes you more organized, of course). Instead of writing “Be a perfect student from next week on“, you might prefer “set aside fifteen minutes a day to keep track of assignments“. This not only sounds more doable and motivating, but actually ticking off things on your list will give you a good feeling.

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Help! 

Still thinking this won’t work for you? It’s time to look for someone you can tell what you’re about to do. Whenever I tell someone about my plans, I get motivated on the spot. The next time you see this person, you’ll obviously want to tell him or her about what you’ve done since you last saw each other. And answering “Hmm…nothing“ doesn’t feel too good, does it? Let’s try to achieve our goals together (in 2017, not 2018)!

Author & Pictures: Laura Annecca

Wings for Life

Participants seen during the Wings for Life World Run in Izmir, Turkey on May 8, 2016.
Participants seen during the Wings for Life World Run in Izmir, Turkey on May 8, 2016.

Some people think walking is a waste of time, but others dream about being able to walk or just move their legs, for example, those affected by spinal cord injuries. This condition takes away what most of us take for granted, the ability to walk. Sadly, those affected are incapacitated for the rest of their lives because there’s no treatment available. One research foundation, called Wings for Life, aims to find a cure for such injuries and has a unique way to gather support. It organizes a running event where everybody can participate anywhere.

Finding a cure

The founders of Wings for Life are the two Austrians Heinz Kinigadner, a motocross racer, and Dietrich Mateschitz, a businessman who co-founded the Red Bull Drink company. They were personally moved by the injury of Kinigadner´s son, which left him paralyzed from the neck down. Soon, they had to realize that not enough resources were being invested in finding a cure, so they started the non-profit organization.

factsHelping out

Wings for life organizes an annual charity run that takes place simultaneously worldwide. All the money raised goes towards research efforts for finding a cure to help the injured to walk again. This year the world run will take place on May 7th and costs €43. You can start training for the race now and be fit on time.

Run until you are caught

This isn’t your typical race with a set distance. Half an hour after the race starts, a so-called catcher car starts its pursuit, though very slowly at first. As long as the car doesn´t catch up with you, you´re still in the race. Since everybody has their own fitness level, the catcher car will gradually increase its speed after one hour until it catches up with everyone – except for one man and one woman, the world champions.

Race anywhere

The nearest official location to join the race is Munich. However, you can participate anywhere as a selfie runner by simply downloading an application to your smartphone that simulates the car catching up with you based on your GPS-tracked running distance. As a selfie runner, there’s no participation fee, but you’re encouraged to donate to the cause. Even if you decide you´re not ready to run yourself, you can still enjoy the race via a livestream from all official runs worldwide. So take this opportunity to enjoy the gift of health, and having strong legs that can take you anywhere you want, even closer to your dreams, and run for those who can´t.

For more information, check out: https://www.wingsforlifeworldrun.com/de/de/

Author: Annelise López de Schwarzer
Pictures: Redbull Content Pool